Welcome to Hannah Bose's Stepping Out to Cure Scleroderma Page!

Thank you for visiting my personal fundraising page to support this Stepping Out to Cure Scleroderma event!

Thank you, from the bottom of my heart, for being here and for supporting me and this cause. Every donation, message, and share truly means more than I can put into words. Your support reminds me, year after year, that I am not walking this journey alone.

This past year brought meaningful moments of connection, growth, and purpose. One of the highlights was attending the National Scleroderma Conference in St. Louis in July 2025. Being surrounded by Scleroderma Warriors from across the country was both grounding and inspiring. I learned about current and emerging research, connected with people who deeply get it, and felt renewed hope for what’s possible. I was also incredibly honored to receive the Chapter Volunteer of the Year Award, and to celebrate our Florida–Puerto Rico Chapter being named Chapter of the Year - a true testament to the power of community and collective care.

Professionally and personally, I continue to do work that feels aligned with my values and purpose. I’m grateful to still be showing up as a mental health counselor, yoga teacher and mentor, support group leader, chapter advisory board committee member, Stepping Out Committee member, and this year I also launched a book study program called Pages with Purpose—a space for reflection, connection, and meaningful conversation. These roles continue to shape me just as much as I hope they support others.

Alongside these bright spots, my health journey remains complex. I’m continuing to experience active disease, including joint issues, ongoing body pain, and skin progression. While I’m thankful that my lungs remain stable, finding an effective medication continues to be a challenge. This reality can be discouraging at times—but it also fuels my determination. It’s a powerful reminder of why this walk matters so much to me.

I walk because I believe in a future with better treatments, and ultimately, a cure. I walk to advocate for research, awareness, and support for everyone impacted by scleroderma. And I walk with deep gratitude for people like you who help make this work possible.

Thank you for supporting my fundraiser and for being part of this cause. If you’re able, please consider sharing this page with others to help spread awareness and extend our collective impact. Your generosity, encouragement, and belief in this mission truly carry me forward - step by step.

With so much gratitude,
Hannah