Thank you for visiting my personal fundraising page to support this Stepping Out to Cure Scleroderma event!
Your support means so much. Donating through this site is quick, easy, and secure, and it’s the most effective way to help me raise funds that directly support the National Scleroderma Foundation’s mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks. To make a donation, simply click “Donate” and complete the form.Want to get more involved? You can also register and join my team to fundraise alongside me! Or create your own team. Click above to get started.
I truly appreciate your generosity and encouragement. Please consider sharing this page with friends and family who might also want to make a difference.
Together, we can raise awareness, support those living with scleroderma, and bring us one step closer to finding a cure.
My Achievements
Set Up Fundraising Page
Raised $250
Raised $500
Raised $1,000
Raised $5,000
Raised $10,000
Updated Profile Pic
Added a Blog Post
Received 5 Donations
Reached Fundraising Goal
Increased Fundraising Goal
My Updates
Laverne's Story
Monday 26th JanFor 40 years, Scleroderma has been a part of my life. I was only 12 when my symptoms first appeared, but it took a decade—until I was 22—to finally get the diagnosis of localized Scleroderma. Now, at 52, the condition we call Linear Scleroderma continues to spread, constantly reminding me of its presence.
Living with this disease requires a constant fight. Every week, I take 10 pills of Methotrexate—a treatment that keeps the disease progression in check but often leaves me with exhausting fatigue and a weakened immune system. This walk is a tribute to the quiet, daily struggle every Scleroderma patient faces just to maintain stability.
My involvement with the National Scleroderma Foundation (NSF) is walking and on the planning committee. The NSF has poured education and support into my journey by sending me to two patient conferences (2019 and 2025). These experiences were incredible learning experiences. I learned crucial information about my own health, and more importantly, I connected with incredible people living with the extensive forms of Scleroderma.
I am stepping out to cure Scleroderma not just for myself, but to be a pillar of support for my scleroderma family. Every dollar we raise ensures the NSF can continue its life-saving research and provide essential education and support that has empowered me and countless others.
