Thank you for visiting my personal fundraising page to support this Stepping Out to Cure Scleroderma event!
Your support means so much. Donating through this site is quick, easy, and secure, and it’s the most effective way to help me raise funds that directly support the National Scleroderma Foundation’s mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks. To make a donation, simply click “Donate” and complete the form.Want to get more involved? You can also register and join my team to fundraise alongside me!
I truly appreciate your generosity and encouragement. Please consider sharing this page with friends and family who might also want to make a difference.
Together, we can raise awareness, support those living with scleroderma, and bring us one step closer to finding a cure.
My Achievements
Set Up Fundraising Page
Raised $250
Raised $500
Raised $1,000
Raised $5,000
Raised $10,000
Updated Profile Pic
Added a Blog Post
Received 5 Donations
Reached Fundraising Goal
Increased Fundraising Goal
My Updates
My Story
Monday 25th May I was diagnosed with Scleroderma in August of 2019. I had been doctoring for several years with no answers. I went in for my annual check up in early 2109 and my PA asked if I had ever had an ANA test. I said "I don't think so, but I don't know for sure." She said it was blood test and since she was sending me for labs anyway, could she add it to the orders. I said "Sure, why not. What's it going to hurt?" She called me the next day with results and they were off the chart. She referred me to rheumatology at the U of M. I was diagnosed at my first appointment at the U of M. I continue my treatment there with a wonder doctor. My symptoms are stable, but still present in my everyday life.Scleroderma is difficult to diagnosis and treat. The symptoms are the same in every patient, but the way the present themselves and affect the person is very different. There is not a cure for Scleroderma and treat is a lot of trial and error. There is a lot of ongoing research for better treatment options and hopefully someday a cure.
If you are able to make a donation and/or walk, I grately appreciate it. The Scleroderma Foundation, is grateful as well. If not, that is OK. I appreciate you taking time to read my story and considering making a donation.
Thank you again for your time and consideration.
Lisa Thomfohrda
Share
